Why JG Zebra Consulting?

We build innovative, collaborative solutions that overcome barriers to access to healthcare. We specialise in rare and serious conditions and novel therapies.

 

We prioritise truly understanding our clients’ needs and building strategic solutions for patient access that look beyond traditional silos and bring together policy, patient advocacy and market access to help shape the policy and access environment.

 

JG Zebra is headed by Josie Godfrey, a recognised expert in rare diseases and Health Technology Assessment with over 20 years of experience. She brings her deep knowledge of access, advocacy and policy to help clients navigate complex policy and market access landscapes.

 

Josie’s previous experience includes establishing the Highly Specialised Technologies (HST) programme at the National Institute for Health and Care Excellence (NICE). She has worked in a global policy and patient advocacy role in the pharmaceutical industry, in policy roles in the NHS and England’s Department of Health and Social Care, and sat on the board of patient advocacy organisations.

 

A key aspect of Josie’s work is her ability to build and lead successful multi-stakeholder collaborations. She is the Strategic Director for the award-winning Project Hercules, a collaboration that develops essential tools and evidence to support HTA for new treatments in Duchenne muscular dystrophy. Additionally, she serves as a co-lead investigator for RareCare, a major research program evaluating the effectiveness of the England’s Rare Diseases Action Plans. Her expertise lies in finding common ground and driving consensus to address complex challenges in policy and access.

 

We partner with other individuals and organisations to bring together the best team to meet our clients’ needs.

 

 

What We Do

Market access strategy

Rare disease market access health checks

Strategic evidence plans

Market access strategies and roadmaps

Market access strategy workshops

Preparing for HTA, including mock appraisals

Public policy

Audit of policy barriers to access

Policy strategy and initiatives 

White papers

Consultation responses and position statements

Stakeholder engagement

Facilitating and chairing multi-stakeholder workshops

Stakeholder engagement plans

Other services

Project planning and delivery 

Research and writing 

Committee secretariat services

Lectures and workshops 

Recent Projects

JG Zebra has taken a leading role in setting up and running the EURORDIS award-winning Project HERCULES, an ongoing collaboration led by patient organisation Duchenne UK. We provide project management and Josie Godfrey acts as Strategic Director. Bringing together patients and carers, clinicians, industry, academia, HTA bodies and other stakeholders, the project has broken new ground in developing tools to promote access to treatments in rare diseases. Project HERCULES has delivered a gold standard economic model for Duchenne Muscular Dystrophy, and the tools and data required to populate the model.

JG Zebra recently supported a rare disease biotech company to develop a market access strategy for the UK. Working with the client to understand their needs, we identified skills and data gaps in the planned approach to market access, developed a strategic evidence plan and prepared for negotiations with NHS England and for scoping and assessment by NICE.

Josie has been a driving force in designing and managing a European collaborative platform of leading companies active on gene and cell therapy. Her knowledge, vision and talent for finding common ground, as well as the respect she commands amongst her peers, were invaluable in shaping ground-breaking industry policy positions on the access challenges (HTA and pricing) facing that particular group of innovators today in Europe, in forming broader consensus around these positions, and in investigating potential solutions.

Director: Policy - Europe
Mid-size speciality pharmaceutical company

Josie’s experience from working on the industry and the payer / HTA side means she brings a wider perspective and deeper level of understanding. She has supported Hanover and our clients on strategy development and implementation and her insight and constructive challenge always add value.

Managing Director
Leading healthcare communications consultancy

Contact

If you would like to get in touch to discuss how we can help your organisation please contact admin@jgzebra.com