Why JG Zebra Consulting?
Navigating the path to sustainable patient access:
Do you keep asking the same questions without finding the answers you need?
If your challenge doesn’t fit into a standard box, a standard agency won’t solve it.
JG Zebra is not just another access agency. We are the strategic partners you need when a problem doesn’t fit neatly into traditional, siloed thinking. We can provide a vital bridge between global policy, patient advocacy, and market access.
We specialise in rare diseases and novel therapies – areas where traditional frameworks often fail to deliver for patients. Whether you need a collaborative programme builder, a guide to navigating the path to sustainable patient access, or ad hoc advice, we help our clients move beyond traditional thinking to find answers that work and overcome the most complex barriers to healthcare.
JG Zebra helps the pharmaceutical industry, patient advocacy organisations, and other stakeholders navigate the grey areas of healthcare, to ensure that breakthrough science reaches the people who need it most.
A 360-degree view of the access landscape.
JG Zebra is led by Josie Godfrey, a specialist with over 20 years of experience who has sat at every point around the access table. Her perspective is shaped by a career spent working with payers, industry, and patients to find common ground in complex environments.
- International HTA Insight: Josie established the Highly Specialised Technologies programme at NICE, a framework that has become a global reference point for evaluating rare and complex treatments.
- Global Industry Contribution: She has worked within global pharmaceutical policy and advocacy teams, providing the strategic link between global corporate vision and local market implementation.
- Policy & Health Systems: Her experience includes roles within the NHS and England’s Department of Health and Social Care, giving her a deep understanding of the internal pressures facing health systems.
- Patient-Led Innovation: Having served on the boards of patient advocacy organisations, Josie is committed to ensuring that the lived experience of patients is the primary driver of access strategy.
Josie is a strategic partner for those who need to find common ground and drive consensus across multi-stakeholder landscapes.
Pragmatic solutions for uncommon challenges
We partner globally with individuals and organisations to assemble the right team for every challenge. Our work focuses on four pillars where standard processes don’t always fit:
Market Access and Evidence Strategy
- Launch Readiness and Market Access Roadmaps: Readiness health checks, strategic roadmaps, and strategic evidence plans to navigate HTA bodies like NICE.
- HTA Preparation: Supporting access strategy and value narratives, preparing for negotiations, reviewing dossiers and conducting mock appraisals.
- Collaborative Tools: Driving the evidence generation required to prove value in small or complex populations.
Public Policy and Stakeholder Engagement
- Consensus Building: Designing and managing collaborative platforms to address international and local health policy challenges.
- Policy Audits: Identifying specific barriers to access and healthcare and developing strategies to overcome them.
- Strategic Positioning: Drafting white papers, consultation responses, and position statements.
Leading global patient initiatives
- Capacity Building: Supporting international and local patient advocacy organisations in building the evidence, data tools, and infrastructure needed to engage as equal partners in HTA.
- Strategy & Engagement: Developing multi-year roadmaps for global patient communities to prepare for first-in-class drug approvals.
- Patient-centred research: Designing and delivering complex patient-centred research programmes.
Collaborative Programme Building and Speaking
- Multi-Stakeholder Alliances: Building and leading successful collaborations between industry, patient advocacy organisations, clinicians and other experts.
- Expert Contribution: Josie is a regular speaker at international congresses, providing pragmatic insights on international access, advocacy and policy challenges.
Recent Projects
HERCULES (Duchenne muscular dystrophy): Josie serves as Strategic Director for this award-winning, world-first collaboration. By bringing together patients, clinicians, industry, and HTA bodies, the project created a gold standard economic model, a bespoke measure of Health-Related Quality of Life and an evidence base that now serves as a global template for rare disease access.
RareCare (UK Rare Disease Framework): Serving as co-lead investigator for this major research program evaluating the effectiveness of England’s Rare Diseases Action Plans. Josie, in partnership with Lindsay Birrell, has led the design and delivery of this two-year patient-centred, policy relevant research programme.
Project MERCURY (Facioscapulohumeral muscular dystrophy): Global Access Lead for an international multi-stakeholder alliance to prepare the FSHD community for future drug approvals. This project integrated international landscape analysis, evidence generation, and proactive patient and clinician engagement into a clear, strategic roadmap for access.
European Policy Collaboration: Designed and managed a collaborative platform of leading companies to shape industry policy positions on European HTA and pricing challenges.
Contact
If you would like to get in touch to discuss how we can help your organisation please contact admin@jgzebra.com